Episode 165: Chris Sawka: AAC User & USSAAC Committee Member

This week, we interview AAC user, USSAAC Membership Committee member, artist, and TWT superfan Chris Sawka! Chris provides great insights into some of the challenges and victories he has had as a full-time AAC user, how he socializes with other AAC users, playing sports on a paraolympic team, and more!

Before the interview, Chris talks about the ATIA presentation by Kevin Williams, who won the Prentke AAC Distinguished Lecturer award. Chris notes that Kevin said he continues to use multiple AAC tools to communicate depending upon what is right for that moment. Chris and Rachel discuss how the communication “system” for most people today, whether or not they use verbal speech, is made up of a complex web of tools (e.g. text, video, email) that evolve over time.

Key ideas this week:

🔑 Communication partners need to make AAC fun and not give up if the user doesn’t like AAC at first. Talk to them with the device, use it during activities like dinner, and pass the device around to have everyone use it.

🔑 People in public often don’t realize how smart Chris Sawka is. People talk with Chris in a loud voice even though Chris can hear perfectly well, and they talk to him like a child, even though he is an adult.

🔑 Chris Sawka doesn’t like it when people talk to his parents or his aide rather than him directly. Chris wants to reply himself and doesn’t appreciate when people talk about him like he isn’t there.